BENEFITING: Beyond Batten Disease Foundation
ORGANIZER: Beyond Batten Disease Foundation
EVENT: The Woodlands Marathon 2016
EVENT DATE: Mar 04, 2016
On March 5, 2016 I will run my second full marathon for a young man named Will Herndon who is fighting a rare genetic, neurodegenerative disorder called Juvenile Batten Disease in which currently there is no treatment or cure. Despite losing most of his vision, experiencing seizures, short term memory loss & cognitive delay, his spirit and body remain strong.
He is a fighter and because of him, I will not give up no matter what obstacles I face on race day. Will has given me the courage, determination & #WillPower to prepare & conquer 26.2 miles at The Woodlands Marathon on to 140.6 miles at Ironman Texas in May 2016.
If your heart desires, please consider donating to save Will and others like him.
With your help and support we have HOPE that a cure will be found.
Where there's a Will, there's a way!
More about my race journey click #TeamByers