BENEFITING: Epilepsy Foundation of Metropolitan New York
Danette Rodriguez wrote -
Mason Lyman, 4 years old, needs your help! My brave son was diagnosed with Epilepsy at the age of 2. Looking at my son, you would never know what he is up against. As a family, our goals are to reach out to our community and friends, bring awareness, and raise money for Epilepsy. We encourage everyone to support #TeamMason. Your donations and contribution will not only express your love for Mason, but it will also help thousands diagnosed with Epilepsy.
As parents, we began to notice Mason doing strange things when he was asleep. He was only 1 and a half when he was walking into things. He would wake up in a stare and we would call his name, but he wouldn’t respond. I immediately brought this to the doctor’s attention, but each time all I heard was “he is fine”. I knew deep down inside something wasn’t right, a mother’s instincts. These episodes started happening more and more and it even got worse. Mason would wake up in a stare, lay his head down on one side, he was weak, and often would vomit. Nervously, I used to hold my son’s body life-less not knowing what was wrong with my little boy or what to do? This was and still is a scary experience. As a parent, you want to protect your child from anything and in these moments I felt feel helpless. I fought day in and night for further testing. Finally, at the age of 2 and a half, he was tested. He had an EEG done, which showed spikes, activities of the brain, and it came back abnormal. Then, he was admitted for a video EEG, where they could monitor him and see when his seizures would start and his reaction. The video showed that he was seizing in his sleep without me knowing. The seizure became so strong that it woke him up from his sleep, all I heard him say was “someone is bothering me” I quickly started to ask him questions but he was unresponsive. At that moment, his seizure lasted 25 minutes and the medical staff was there to help him. The doctors were able to analyze the video, and told me that Mason was actually having seizures in his sleep. His seizures would last up to 18 minutes before he woke up, where it continued for a total of 25 minutes. Mason was put on medication twice a day and continues to battle with seizures. There are some good days and there are some bad days. As I mentioned, he is now 4 years old, and he needs to be admitted again because the seizures spread from one side of his brain to other. These moments are heartbreaking for his family, but we have to show him that everything is going to be ok. His strength and courage helps us get through this and I am very proud of my son for being so young and for being so strong!
Again, I encourage everyone to help support #TeamMason. Together, we could make a difference.