As all of my Friends and Family know I'm a 31 year old who was diagnosed in June 2014 with the rare CDH1 gene mutation Stomach Cancer. Stomach (gastric) cancer is the fourth most common cause of cancer worldwide, and the second leading cause of cancer deaths worldwide.HDGC leads to a cancer called diffuse-type, signet ring cell gastric adenocarcinoma.These signet ring cells appear as isolated cells or in small clusters in the lining of the stomach. Unfortunately, the diffuse type of gastric cancer associated with HDGC is difficult to diagnose because the cancer is not visible on upper endoscopy (looking into the stomach with a small camera). For this reason, most cases of diffuse gastric cancer are diagnosed at late stages (III or IV), when the cancer is incurable.Because hereditary diffuse gastric cancer is nearly impossible to detect at an early stage, however, the recommended procedure to prevent gastric cancer is a total gastrectomy, or complete removal of the stomach.
On July 7th, 2014 I decided to have my stomach removed to prevent me from developing the cancer. Now I am trying to help spread awareness to everyone I can about this hidden cancer as so many people don't know about it.
November 1st we will be doing a walk for the No Stomach For Cancer group. You can get more information at the website WWW.Nostomachforcancer.org .
I am in the process of setting up our walk, I will post it soon to everyone interested. Also if you are not able to walk for the cause, I am trying to raise some money. You can donate on this page just by hitting DONATE to this fundraiser. All money donated will go directly to No Stomach For Cancer and anything helps try to bring awareness and research to this cancer.
Thank you for reading my story and I hope I was able to help you understand a little about the CDH1 gene and Stomach Cancer