Join the Fibromyalgia Team. Help us bring awareness to Fibromyalgia.
April 05, 2016
EVENT: Together Walk | Virtual
EVENT DATE: May 14, 2016
Be part of something bigger. Grab a pair of walking shoes, roll up your sleeves, and meet others who want to make a difference. It’s time to make fibromyalgia visible in your community!
Family, Friends, and Followers,
Please join me in my efforts to bring awareness to Fibromyalgia and the challenges that each of us face every day. We need to let people in our community and across the country know that Fibromyalgia is real. It is not just in our heads. Millions of people across the U.S suffer from Fibromyalgia and deserve to be treated with respect, undrstanding, compassion, and hope. Whether we have fibromyalgia, know someone who does, or just want to help bring awareness, it is important to help the National Fibromyalgia & Chronic Pain Association, benefit the Center for Understanding & Education of Fibromyalgia Inc.
For those in Sacramento and the surrounding areas come join Terry McSweeeney for the Sacramento Fibromyalgia Awareness Walk on Saturday, May 14th, 2016 at 10am. We are meeting in front of John F. Kennedy High School, 6715 Gloria Drive, Sacramento, 95831. We will walk slowly through the Greenhaven area surrounding the school and bring awareness to the people of Sacramento and beyond.
I want you to know that I was diagnosed with Fibromyalgia 9 years ago, but probably had it for more than 20 years. Fibromyalgia is not easily diagnosed because of the variety of symptoms, the lack of knowledge by those in our medical communities, and in many cases people go to doctors and are told it is only in their heads. I know because that happened to me over the course of many years, many times. I was lucky to finally find a doctor who understood the symptoms and knew exactly what I was dealing with, that happened 9 years ago. Since that time I have met with many medical professionals, some willing to help, and others telling me, "I know very little about fibromyalgia." One doctor left me in tears because of his lack of understanding. I have been to the ER for pain on several occasions. Unfortunately once the nurses and doctors found out I had fibromyalgia, their interest in helping me went out of the ER with me. They had heard of fibromyalgia, but had no real knowledge of how to help me emotionally or physcially other than to give me pain meds and send me home. It was very disheartening. I knew then that I had to do something to change the perception that medical practitioners have about fibromyalgia so that they can better help their patients. No patient needs to leave a doctor's office in tears. Friends and family members of those with fibromyagia need also to learn how to best support and encourage the people in their lives with fibromyalgia. These walks will bring awareness to these issues and others and allow the research to take place that is necessary to correct the misperceptions held by many in our communities around the country.
Please join Terry's "Fibromyalgia Pathways" walk and help raise funds to make this research and education happen. Use this link to join Terry's team: http://www.crowdrise.com/terry-togetherwalkvirtual Once you click on this link you will have a fundraising page as part of my team and we can all raise funds together.
Thanks so much,
Terry A. McSweeney
Indeppendent Fibromyalgia Advisor
The National Fibromyalgia & Chronic Pain Association is joining forces with people like you across the U.S. to launch TOGETHER WALKS in 2016 to raise fibromyalgia awareness and research funding. Passionate Leaders have already taken the lead for 2016 in Richmond, Portland, Coral Springs, Louisville, and a Virtual Online Walk.
We’ve organized a virtual Together Walk so you can form teams online, or with whomever you want to connect, even while you are at home. Everyone can participate regardless of their health status or ability to travel to specific locations. Your voice matters in changing how fibromyalgia is perceived, treated, and researched.
Fibromyalgia is a life-altering condition affecting 2-4% of women, men and children of all backgrounds worldwide to suffer. (That’s 10 million Americans alone.) The illness can strike suddenly or occur as a gradual increase in symptoms, indicating changes in the central nervous system (neuroplasticity). Sensory information (such as light, sound, and touch) becomes amplified by the CNS, causing the brain to respond with increasing pain and symptoms. FM severity waxes and wanes; often increases over time; and may become disabling.
Through research/innovation seed funding raised at Together Walks, new exploration in areas such as small fiber neuropathy, cervical cord compression, and myofascial release may bring promising new treatments.
What is the Virtual Together Walk? It is pretty simple. Follow these easy steps to participate:
1. Register (Click the Join button above at top of page.)
2. Set a goal for yourself and set up your fundraiser. Raise awareness and funds in your local community to support the efforts of the National Fibromyalgia & Chronic Pain Association.
3. Form a team of your friends, neighbors, support group members, and family. Or choose to participate on your own, knowing you are part of something bigger! You make a difference!
4. We will send you a link to order the official Together Walk T-shirt.
5. A virtual walk can be done in two ways: online or in your community. Choose your distance: you may walk around the block, do a 1K walk at the local mall, or even try a longer walk or run around your neighborhood. Do what you can. There is no distance too short. Be creative if you are unable to walk by forming a team online and fundraising with friends.
6. Strolling, walking, or running is best scheduled during the week of Fibromyalgia Awareness Day (May 12).
7. Take a photo of you and your team with a “Together we make a difference” sign and share it with the hashtag #togetherwalks on social media and tag us @togetherwalks on Twitter, Instagram, Facebook and YouTube. Use your imagination – your voice matters!
This is an opportunity for people with fibromyalgia to have an action-oriented, healthy event for their friends, family, neighbors and healthcare providers to support them in a positive and uplifting way. These walks are foundational for the NFMCPA to continue strengthening its four tenets: increase of support, awareness, education and research globally.
As a participant, you will have access to educational materials about fibromyalgia and enjoy live-streaming of presentations from medical professionals with expertise in fibromyalgia and pain disorders at other Together Walks across the nation.
The NFMCPA thanks you for your continuing support and looks forward to walking with you.
Can you imagine what can be done together when there is a walk in every state and across the globe? If you are interested in hosting a Together Walk in 2017, please contact the NFMCPA at firstname.lastname@example.org.