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Megan Kolendrianos' Fundraiser:

Team Rett Boston Marathon 2012

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owner profile imageMegan Kolendrianos via Crowdrise
November 15, 2011

Please support me in running the Boston Marathon in honor of my daughter Sorel and all our silent Angels!  See more
Megan Kolendrianos

THE STORY:

RETT SYNDROME ASSOCIATION OF MASSACHUSETTS INC wrote -

Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett syndrome can be reversed!

Seen almost exclusively in girls, Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000 females. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Although Rett syndrome leaves all girls and women dependent on others for all of their basic needs, tremendous advances in research have been made since the MECP2 mutation was discovered in 1999.

This IGF1 groundbreaking clinical trial, now being conducted by Dr. Omar Khwaja and his team at Children's Hospital Boston, is the first disease-modifying therapy to be tested on girls with Rett. Greeted by an outpouring of enthusiasm from the Rett syndrome community, this trial is giving families enormous hope for a brighter future.

Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome!

 

$8,250

MONEY RAISED
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  • Anonymous

    $45

  • Lisa McCollum

    $45

  • Victoria Congdon

    $45

  • Meg Purdy

    $45

  • Caressa Allen

    $45

  • Jessica Degner

    $45

  • Jen Dudley

    $45

  • Chris&Brooke; McGillivray

    $45

  • Elizabeth Wagner

    $45

  • Kristie Chapman

    $45

  • Nasha Moon Heyman

    $45

  • Jennifer Lovette

    $45

  • Mary Bekakos

    $25

  • Carolyn smit

    $45

  • Anonymous

    $45

  • Maggie Saunders

    $45

  • Julianna Zapata

    $45

  • Erin Ohlgren

    $45

  • Brady Charrette

    $45

  • Nicole McCoy

    $45

  • Cathi Ellis

    $45

  • Mary O'Flynn

    $45

  • Tyler Harms

    $45

  • Lizzy Morrison

    $45

  • Bethann Cohen

    $45

  • Jessica Gibbs

    $45

  • Lauren McDermott

    $45

  • Nicole McCoy

    $40

  • Tarpey/Morrison

    $50

  • Megan

    $50

  • Lynch

    $50

  • B & B

    $715

  • Transki/Fraser

    $50

  • Beth Ann Cohen

    $275

  • Lynch

    $20

  • Stoll

    $150

  • Chapman

    $100

  • cohen

    $100

  • Herlihy

    $50

  • Levy

    $20

  • Catherine Stoll

    $1,100

  • Tracy Stoll

    $70

  • The Baker Family

    $20

  • Anonymous

    $26

  • Brodnitzki Family

    $25

  • Maria Linden Bieluch and Family

    $100

  • Carm & Randy

    $50

  • Sarah Kuriakose

    $25

  • Connie, Jeff, Demetra & Alec Rishwain

    $725

  • Nancy Hubert

    $50

  • Daune Dowell

    $50

  • John Mosby

    $50

  • Brent Swartzentruber

    $50

  • Jennifer Griffin

    $50

  • The McInnis Family

    $20

  • Lissy-Lou's Gramma

    $40

  • Lisa Willis Brainerd

    $50

  • Low Family

    $100

  • Kristen Jones Tangarone & Family

    $20

  • Rich and Tonya Crandall

    $50

  • Paige, Jesse, Katie, Melissa, Abby

    $50

  • Knit & Pearl Boutique

    $100

  • Alison Grube

    $20

  • The Harbicht Family

    $100

  • Anonymous

    $30

  • Alexandra, Mike & Melina Ramirez

    $40

  • Paige Crump Neary and Family

    $50

  • Josh, Court and Addy Applequist

    $50

  • Serafim and Mary Grove

    $25

  • Chad & Tanya Steenerson

    $100

  • Anonymous

    $25

  • Rebecca Johnson - KSI - Newish Employee

    $50

  • Uncle Ken and Aunt Sandee

    $50

  • Jade Razzano

    $25

  • Joy Moats

    $25

  • Anna Moyer

    $30

  • Heidi Heitkamp

    $26

  • Mike and Vivian Pahos

    $250

  • Karl Storz Imaging

    $1,000

  • The Pawl Family

    $100

  • Sloane Pellegrin & Mike CalytorP

    $50

  • Bruce and Maria

    $100

  • Carol Greise

    $100

  • CK

    $68

  • Andriana & Ernest

    $250

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The Team: $116,345 TOTAL RAISED SO FAR

Fundraiser Title

Laura Lewis

Amount Raised

$15,351

Fundraiser Title

Courtney Bonzey

Amount Raised

$9,752

 

195% Raised of$5,000 Goal

Fundraiser Title

Megan Kolendrianos

Amount Raised

$8,250

Fundraiser Title

christina oliver

Amount Raised

$7,765

Fundraiser Title

Kathryn Decelles

Amount Raised

$7,549

Fundraiser Title

Jeanne Troy

Amount Raised

$6,501

Fundraiser Title

Geoff Gillard

Amount Raised

$6,500

Fundraiser Title

Courtney Railton

Amount Raised

$6,225

Donor Comments

Andriana & Ernest

Andriana & Ernest

DONATION: $250

8 years ago

CK

CK

DONATION: $68

8 years ago

Carol Greise

Carol Greise

DONATION: $100

8 years ago

Bruce and Maria

Bruce and Maria

DONATION: $100

8 years ago

Sloane Pellegrin & Mike CalytorP

Sloane Pellegrin & Mike CalytorP

DONATION: $50

8 years ago

The Pawl Family

The Pawl Family

DONATION: $100

8 years ago

Karl Storz Imaging

Karl Storz Imaging

DONATION: $1,000

8 years ago

Mike and Vivian Pahos

Mike and Vivian Pahos

DONATION: $250

8 years ago

Heidi Heitkamp

Heidi Heitkamp

DONATION: $26

8 years ago

Anna Moyer

Anna Moyer

DONATION: $30

8 years ago