BENEFITING: The Foundation for Faces of Children
EVENT DATE: Sep 22, 2013
For the fifth year in a row, we are participating in the Paces for Faces walk to raise money for the Foundation for Faces of Children. The Foundation for Faces was started 25 years ago by Dr. John Mulliken, a world-class cleft surgeon who we were so fortunate to meet on the beginning of our unexpected journey down this road over four years ago.
Since the 2012 Paces for Faces walk, there has been a lot of exciting news at FFC!
- We shattered our previous year's record for attendance and fundraising at the 2012 walk, with more than 500 attendees and over $70,000 raised! Team Elan contributed over $5,000 to that total!
- - FFC finally secured the funds to produce a new feeding video to help both clinicians and new parents learn about the different considerations and special bottles needed to feed chidlren with cleft lip and palate. Elan's pictures were featured prominently throughout the video, and I participated in the section of parent interviews. The video has been really well received, especially by hospitals looking for training materials. It is currently being translated into Spanish and we are fulfilling requests for it to be distributed in over 40 countries. Our family had a great time attending the video premiere in April!
- With the support of my fellow Board members, I helped to launch Parent Drop-In groups to provide an informal yet intimate setting for parents to come, offer each other support, ask questions, and discuss the challenges that lie ahead for their children and themselves. I have enjoyed these groups so much, not just as an organizer but as a participant, and they remind me why I got involved with this organization to begin with.
We've been so grateful and humbled by the support all of our friends and family have shown us the last four years. We love returning to this walk year after year and hope that our participation will help Elan stay connected to a community of friends who can provide him support as he faces the challenges that come with growing up with a craniofacial disorder. We hope you'll consider contributing to our efforts again and supporting this small but much-needed charity that provides support to families just like ours.