BENEFITING: Dysautonomia Project Inc
EVENT: 2018 POTS Pi Day 5K
EVENT DATE: Mar 10, 2018
Andrea LaLomia wrote -
Location: Lake Seminole Park: 10015 Park Blvd., Seminole, FL 33777
Date and Time: Saturday, March 10th, 2018 with registration packet pick up starting at 8:45am.
If you plan to attend the event, please click on the "register" icon first. You can then register individually, set up a team, or join one to the teams already created, and select your t-shirt size. If you cannot attend the event but want to donate to the cause or one of the teams, click on the "donate" icon. Prompts will show you how to dontate to a specific team, or the event in general.
EVENT SCHEDULE and DETAILS: The race will start promptly at 10am. Registration and t-shirt/bib pick-up will open at 8:45am and close at 9:30am. Please plan to arrive early to pick up your bib and t-shirt.
BIBS WILL ONLY BE AVAILABLE TO 5k RUNNERS.
The registration fee is $30 per person. Registration includes a free t-shirt, and access to swag table containing POTS Awareness bracelets, coupons for local businesses, and more... in addition to post race refreshments. Raffle tickets may be purchased for $3 each or 2 for $5, 4 for $10, 10 for $20 on the day of the race. There will be lots of great items in the raffle such as gift cards, salon baskets, jewelry, and more, so bring some extra cash for your chance to win!!! In addition there will be prizes awarded to top fundraising teams, and fastest overall 5k race finishers, male and female in 3 age categories.
"I don't want others to have to struggle to find knowledgeable medical help, the way we did. This event honors not only the memory of my daughter, but also all individuals currently suffering with POTS, EDS and other forms of Dysautonomia. This day is YOURS."
-Tava Wilson Tournant
This fun run/walk will benefit The Dysautonomia Project which is a 501.c3 not for profit organization whose goal is to raise awareness of Dysautonomia. Dysautonomia involves disorders of the autonomic nervous system, and usually involve abnormal symptoms in many organ systems, including cardiac, gastrointestinal, neurological, and pulmonary, as well as others. Dysautonomia, an invisible illness, may be one of the most misdiagnosed medical conditions of all time. The biggest problem in autonomic medicine today is the lack of knowledge about dysautonomia in communities and especially community based physicians. This effort is personal for me. I am blessed beyond measure to be the mother of Christina Tournant, who voluntarily gave up her fight with POTS/Dysautonomia on March 5th, 2015. Christina loved math, so naturally Pi Day (3/14) was her favorite. Since Pi day falls on a Tuesday, we are holding the event the Saturday before (3/10). In high school, Christina won numerous awards, both for athletics and academics. Full of passion for knowledge, Christina was valedictorian of her high school and was accepted at her dream university: The Massachusetts Institute of Technology (MIT), in Cambridge, MA. Throughout these years of achievement, Christina suffered from numerous unusual symptoms and spent MANY hours in the offices of a variety of medical specialists. Christina was finally diagnosed with POTS/Dysautonomia after a friend suggested this as a possibility. Following her diagnosis, we were given misinformation or no information regarding the many symptoms she suffered from or what to expect. Christina was essentially led to believe that she could control this by "thinking positive thoughts." The Dr's did this because they did not know enough about Dysautonomia to be able to educate us, and unfortunately made it seem like it was not a big deal (which was clearly not the case!!).
The AWARENESS and better understanding of Dysautonomia by medical professionals is KEY, and Christina's story exemplifies why it is SO URGENT.
By spreading awareness about Dysautonomia and helping to fund research and treatment centers, I/we hope to help others who are undiagnosed or misdiagnosed, and are suffering. PLEASE help us do this by getting involved in our event. No donation amount is too small:-).