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P.J. Gunsagar's Fundraiser:

Saving Sophie

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BENEFITING: CURE CMD

ORGANIZER: Andrew

P.J. Gunsagar

THE STORY:

Andrew Kim wrote -

At the age of 2, Sophie was diagnosed with a rare genetic disorder called Ullrich, a form of Congenital Muscular Dystrophy, or CMD, which is a group of neuromuscular disorders that currently have no cure or treatment. Children with CMD are born with serious muscle weakness, and their muscles break down faster than they can repair or grow. Some children never walk. Some children, like Sophie, can walk early in life but lose that ability over time. Sophie lost the ability to walk when she was 4. Worse, the daily race of life becomes more exhausting and demanding as this progressive disease continues to weaken their already frail bodies.

But this can all change with breakthroughs in medical research. That’s why on October 5, 2014, we are running the San Jose Rock N’ Roll Half Marathon & 10K to raise money to find treatments for congenital muscular dystrophy, spread awareness about the disease and ultimately to hopefully save the lives of children affected by these diseases.

Sophie is an amazing little girl who just turned 8. She loves pop music (everything from Iggy Azalea to Ellie Golding), the Disney Channel (Ant Farm and Austin and Ally), dressing up and doing her nails, eating Japanese food and Krispy Kreme donuts, reading books like Wimpy Kid and the Land of Stories, complaining about her pesky little brother and hugging him and kissing him when she's not, and putting her hot pink wheelchair on high and gunning it as fast as possible. But although she never complains about her condition, you can tell by looking at her eyes that when she watches other kids, she wants to walk again, and run, jump in the bouncy house, swim in the pool, and dance to all her favorite songs.

So for one day, all these things that she cannot do, which we take for granted, we are going to do for her, in the hope that with your help, maybe one day Sophie, and all the other kids with CMD, will be able to walk and run on their own, if not for a half marathon, then maybe just far enough to chase that butterfly, or race that puppy.

All proceeds from the run will go to CureCMD, a 501(c)(3) non-profit organization that was founded just 6 years ago to raise awareness and fund research for CMD, and all amounts raised will go directly to fund research. Therefore if you are able, we would greatly appreciate your support through an online charitable donation. There is no minimum donation, and any amount you can provide will go a long way towards helping to find a cure for kids like Sophie. Your donation is 100% tax deductible. And please encourage a friend, relative, neighbor, or co-worker to support the organization by donating as well. If you’re on Facebook, LinkedIn or Twitter, please feel free to spread the word.

They say that the worst thing in life is for a parent to outlive their child. As much joy as Sophie brings to all of us, there isn’t a day that goes by that we and other parents of kids with CMD don’t think about that. But there’s not a chance in the world that we are going to let that happen without doing everything we can to prevent it. Unfortunately we can’t do it alone - we need your help. We cannot express in words how much we appreciate any support that you can give. Thank you for taking the time to listen and thank you all from the bottom of our hearts.

DONATE

To This Fundraiser

$16,020

MONEY RAISED
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  • P.J. Gunsagar

    $250

  • Janaki and Manik Bahri

    $100

  • Shweta & Abhishek Kamani

    $100

  • David and Julie Watson Family

    $100

  • Michael Catalano

    $250

  • Naren and Vinita Gupta

    $500

  • Marseille and Todd Steele

    $250

  • The Morgan Family

    $100

  • Davari

    $100

  • Priyanka and Chaitanya Chandrasekar

    $100

  • Rosenbaum Family

    $250

  • Boris & Laura Teksler

    $180

  • Lotta Lahdesmaki

    $200

  • Muskaan and Smayan Mehra

    $100

  • Sid and Chitra Jain

     

  • Neeraj, Raquel, Devan and Dhilan Gunsagar

    $250

  • FF

    $400

  • Pellegrini's

    $100

  • Ranjini Malavalli & Ush Patel

    $251

  • frank and corrie

    $100

  • Jill, Derek, Chase and Reese Johnson

    $250

  • Sonia Saxena

    $1,000

  • Sangeeth & Sindhu Peruri

    $250

  • Mike Cassidy

    $500

  • Kamal and Anita Gunsagar

    $500

  • Genia

    $251

  • Keith and Nicole Lombardo

    $250

  • Yumie Britt

    $100

  • Devika and DJ Patil

    $100

  • Shea, Lori, Emmett and Ana

    $100

  • Anonymous

    $100

  • Anonymous

    $118

  • Ram Kirpalani

    $100

  • Irani family

    $100

  • Mohsin & Tasmia Hussain

    $250

  • jyoti khurana

    $100

  • ryan dawson

    $100

  • Geeta & Ajit Medhekar

    $100

  • Sirey Family

    $200

  • Aidan & Liam White

    $150

  • Monique and Avner Ben-Dor

    $300

  • Anonymous

    $50

  • Stephen and Catherine Simon Family

    $250

  • Neelam and Sarvajit Thakur

    $500

  • Rani Gupta

    $100

  • Sangeeta

    $100

  • Sonia C.

    $130

  • Aaryan Sirohi

    $150

  • Sarna Keswani

    $100

  • Arvind & Neelo

    $200

  • Ramesh & Jaya Varshney

    $100

  • Anonymous

    $25

  • Rajan & Sunita Bahri

    $305

  • Kumar & Vijaya Malavalli

    $500

  • Sujata and Vinod Agarwal

     

  • Vikrant Bhargava

    $500

  • Lisa & PJ Shapiro

    $200

  • Neera Gupta

     

  • Abhijit and Tripti Narendra

    $100

  • Adam Vengrow and family

    $300

  • The Deegan Family

    $100

  • Katchman Family

    $180

  • Moj Razmi

    $50

  • The Elkin Family

     

  • The Jensen Family

    $50

  • Anonymous

    $100

  • Weiss family

    $100

  • Anonymous

     

  • Ravi & Vijaya Sood

    $50

  • Aruna Sood

    $100

  • Urmila and Anand Agarwal

    $51

  • Nagdev Family

    $51

  • Rajesh and Renu Arora

    $100

  • Kusum Gupta

    $31

  • jaya & ranjeet pancholy

     

  • Shrivastava Family

    $500

  • David Hatfield and Masako Ochiai

    $50

  • Brandon, Jennifer, and Andrew Lopez

    $100

  • Cummins

    $50

  • Specker Family

    $100

  • Pooneet & Aditi Goel

    $20

  • Mathan Family

    $100

  • The Braun Family

    $100

  • Chavan Family

    $100

  • Regan Family

    $250

  • Sanjay and Nicole Kumar

    $250

  • Anonymous

    $150

  • Suken and Nidhi Shah

    $50

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Fundraise for this Campaign

The Team: $159,625 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Andrew Kim

Amount Raised

$42,841

 

43% Raised of$100,000 Goal

Fundraiser Title

P.J. Gunsagar

Amount Raised

$16,020

Fundraiser Title

Team Phillips

Amount Raised

$12,000

Fundraiser Title

Mark Liu

Amount Raised

$9,035

Fundraiser Title

Joyce & Bobby

Amount Raised

$8,510

Fundraiser Title

Hogene Choi

Amount Raised

$4,290

Fundraiser Title

Dong Choi

Amount Raised

$3,675

Fundraiser Title

Wylea Kirkpatrick

Amount Raised

$3,500

Donor Comments

Suken and Nidhi Shah

Suken and Nidhi Shah

DONATION: $50

6 years ago

Anonymous

Anonymous

DONATION: $150

6 years ago

Sanjay and Nicole Kumar

Sanjay and Nicole Kumar

DONATION: $250

6 years ago

Regan Family

Regan Family

DONATION: $250

6 years ago

Chavan Family

Chavan Family

DONATION: $100

6 years ago

The Braun Family

The Braun Family

DONATION: $100

6 years ago

Mathan Family

Mathan Family

DONATION: $100

6 years ago

Pooneet & Aditi Goel

Pooneet & Aditi Goel

DONATION: $20

6 years ago

Specker Family

Specker Family

DONATION: $100

Hoping for a cure 6 years ago

Cummins

Cummins

DONATION: $50

6 years ago