tonydeluca's profile image - click for profile

Tony Deluca's Fundraiser:

Running Big Miles for Epilepsy

Tony's Photo
Tony's Photo
Tony's Photo
Tony's Photo
Tony's Photo
Tony's Photo
Tony's Photo
Tony's Photo

BENEFITING: Epilepsy Foundation

EVENT: Do-It-Yourself

EVENT DATE: Jun 27, 2015

Mileage Tracker: 872

Tony Deluca

THE STORY:

As someone with Epilepsy, the Epilepsy Foundation's work and support has been very important in my life. I have been fortunate and my condition is well controlled now. I have a goal of raising $2,500 to help fund the Epilepsy Foundation's great work and I am asking for your help!

The Races

What am I going to do?  I am going to run 2 marathons (26.2 miles each!) and one 50k (that's 31.1 miles!) for the Athletes vs Epilepsy team and do it all in 8 weeks time! I will be running the Pittsburgh Marathon May 3rd, God's Country Marathon June 6th, and the Hell Hath No Hurry 50k on June 27th. The God's Country Marathon was rated as one of the 10 toughest in the nation by Runners World magazine! The first 18 miles are uphill! (what did I get myself into)   From the start of training January 1st to the end of June I'll be putting almost 1000 miles on these legs.  To put that in perspective I ran just a hair over 1000 miles all last year!I have never attempted anything like his before. 

I am raising the bar on what I can accomplish running and together we can raise the bar for helping the Epilepsy Foundation!

The Goal

Together let's raise at least $2,500 for accelerating new treatments, bringing awareness, and providing a support structure to those suffering with Epilepsy.

My Story

At age 15 I had my first seizure.  It scared my poor parents half to death! I stopped breathing for a little and was turning shades of blue and green.  At the time it was referred to as a Grand Mal, a term no longer used.

Sometimes I would have 1 seizure a year and sometimes many in a single month. I have been very fortunate.  I get what some call an aura, telltale signs that I will have a seizure.  It gives me time to get to a safe place. I’d get what I call pixellated vision.  Everything seems to be vibrating … almost like a migraine light sensitivity. Then numbness progressing through one side of my body … sometimes left, sometimes right.  And then the seizure would come.

After many years and many medication changes (none of which were 100% effective) I went into the Epilepsy Monitoring Unit for continuous EEG and observation.  After that the doctors tried a few more medications,  Keppra caused mood changes. I am a laid back person, but it made me angry all the time. Lamictal gave me a rash.  Finally we tried Trileptal. 

I have only had one seizure (just recently in early April) in about 3 years!! Since then I quit smoking and started running ...a lot.

The Epilepsy Foundation

The Epilepsy Foundation provides so much to those with Epilepsy and their families.  They advocate tirelessly for new treatments , provide education and support, reach out to the community, and put patients in touch with doctors. The 24/7 helpline is always there to answer questions and help caregivers, those with epilepsy, and anyone curious to learn more.These are just a few of the great things that your donation will help fund. Go to www.Epilepsy.com to learn more.

Living with Epilepsy is hard. Never knowing when that next seizure will come, the pain and recovery, and the pain we see in our families and loved ones who are there to get us through a seizure. 

Please help this cause, which is dear to my heart, with a tax deductible charitable donation. Whatever you can afford will be greatly appreciated!

Tony

 

 

Statistics

65 MILLION: Number of people around the world who have epilepsy.

OVER 2 MILLION: Number of people in the United States who have epilepsy.

1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.

BETWEEN 4 AND 10 OUT OF 1,000: Number of people on earth who live with active seizures at any one time.

150,000: Number of new cases of epilepsy in the United States each year

ONE-THIRD: Number of people with epilepsy who live with uncontrollable seizures because no available treatment works for them.

6 OUT OF 10: Number of people with epilepsy where the cause is unknown.

50,000: Number of people who die from epilepsy-related causes in the United States every year.

DONATE

To This Fundraiser

$936

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Fran Stauffer

    $20

  • Kimberly McCann

    $50

  • The Raffaeles

    $25

  • Ryan Trimmer

    $20

  • sval

    $25

  • Lisa Del Rey

    $10

  • Dick & Kay Krafchik

    $100

  • Angela Lu

    $100

  • Jim Zubritski

    $25

  • Christine Shaw

    $10

  • Don Gmann

    $20

  • Alyssa Chance

    $25

  • The Krafchiks

    $50

  • Keana "Kiki"

    $25

  • Ben Schultz

    $50

  • special friend

    $50

  • Anonymous

    $36

  • Ed Glazenski

    $25

  • Anonymous

    $34

  • Anonymous

    $36

  • Melissa

     

  • Jason Glasser

    $39

  • nick

    $50

  • Keith Stone

    $50

  • Anonymous

    $36

  •  
  •  
  •  
 

37% Raised of$2,500 Goal

Fundraise for this Campaign

The Team: $936 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Anonymous

ANONYMOUS

DONATION: $36

Tonys 50k 4 years ago

Keith Stone

Keith Stone

DONATION: $50

4 years ago

nick

nick

DONATION: $50

4 years ago

Jason Glasser

Jason Glasser

DONATION: $39

Rounding your total off before the race 4 years ago

Melissa

Melissa

4 years ago

Anonymous

ANONYMOUS

DONATION: $36

In honor of Tony and Tara 4 years ago

Anonymous

ANONYMOUS

DONATION: $34

Inpiritional Tony... 4 years ago

Ed Glazenski

Ed Glazenski

DONATION: $25

4 years ago

Anonymous

ANONYMOUS

DONATION: $36

in Honor of Tony's Pittsburgh PR 5 years ago

special friend

special friend

DONATION: $50

5 years ago