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Shelby Bates' Fundraiser:

RockingtheStockings

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owner profile imageFundraiser Conclusion!
March 03, 2018

Today we had the POTS 5K in Colorado. Thank you so much for those of you locally who could attend. And thank you to everyone for taking time  See more

BENEFITING: Dysautonomia Project Inc

EVENT: 2018 POTS Pi Day 5K

EVENT DATE: Mar 10, 2018

Shelby Bates

THE STORY:

This fun run/walk/roll will benefit The Dysautonomia Project which is a 501.c3 not for profit organization whose goal is to raise awareness of Dysautonomia. Dysautonomia involves disorders of the autonomic nervous system, and usually involve abnormal symptoms in many organ systems, including cardiac, gastrointestinal, neurological, and pulmonary, as well as others. Dysautonomia, an invisible illness, may be one of the most misdiagnosed medical conditions of all time. The biggest problem in autonomic medicine today is the lack of knowledge about dysautonomia in communities and especially community based physicians.


My Story 


Hi! I'm Shelby and I love running! In the spring of 2016, I started to experience exercise intolerance. Soon I could no longer run. After developing many more symptoms, in the fall of 2017, I was diagnosed with POTS. Over those two years, once a month, I would put on my running shoes and try to run. It never worked; after less than a minute, I'd end up with an incredibly high heart rate, totally confused, and laying on the ground. 


With my POTS diagnosis, I started to learn about my new body and how to listen to it. I also learned to exercise in a way that fit myself. I made it my goal for 2018 to run one mile. With much joy, I can report I accomplished my goal at the end of January. 


This does not mean I am cured, nor does it mean I will always be able to run. It means that one day, I ran. And, that my friends, is absolutely huge in my book. I'm participating in the POTS Pi Day 5K to give back to the dysautonomia community, which has given me so much in such a short time. 


The Reason for the Event


"I don't want others to have to struggle to find knowledgeable medical help, the way we did. This event honors not only the memory of my daughter, but also all individuals currently suffering with POTS, EDS and other forms of Dysautonomia. This effort is personal for me. I am blessed beyond measure to be the mother of Christina Tournant, who voluntarily gave up her fight with POTS/Dysautonomia on March 5th, 2015. Christina loved math, so naturally Pi Day (3/14) was her favorite. Since Pi day falls on a Tuesday, we are holding the event the Saturday before (3/10). In high school, Christina won numerous awards, both for athletics and academics. Full of passion for knowledge, Christina was valedictorian of her high school and was accepted at her dream university: The Massachusetts Institute of Technology (MIT), in Cambridge, MA. Throughout these years of achievement, Christina suffered from numerous unusual symptoms and spent MANY hours in the offices of a variety of medical specialists. Christina was finally diagnosed with POTS/Dysautonomia after a friend suggested this as a possibility. Following her diagnosis, we were given misinformation or no information regarding the many symptoms she suffered from or what to expect. Christina was essentially led to believe that she could control this by "thinking positive thoughts." The Dr's did this because they did not know enough about Dysautonomia to be able to educate us, and unfortunately made it seem like it was not a big deal (which was clearly not the case!!).

The AWARENESS and better understanding of Dysautonomia by medical professionals is KEY, and Christina's story exemplifies why it is SO URGENT.

By spreading awareness about Dysautonomia and helping to fund research and treatment centers, I/we hope to help others who are undiagnosed or misdiagnosed, and are suffering. PLEASE help us do this by getting involved in our event. No donation amount is too small."-Tava Wilson Tournant

$8,500

MONEY RAISED
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  • Suzanne Bratlee

     

  • Trevor Bates

     

  • Honey Darji

     

  • Rita Flynn

    $25

  • Katie Phelps

    $25

  • Carla Stearns

    $50

  • Brett Clark

     

  • Karen Fisher and family

    $50

  • Jenny Mulvihill

    $50

  • Anonymous

    $30

  • Lindsay Spaulding

    $30

  • Greg Scheetz and Nathan Kopp

    $50

  • Kelly McIlvride

    $40

  • Matt Gillam

     

  • J-Hollllaaaaaaa

    $50

  • Jill Schneider

     

  • Mary Pratt

    $50

  • Rebecca Goertzel

    $50

  • Anonymous

    $30

  • Tim Adams

    $25

  • Allison Adams

    $50

  • Anonymous

    $30

  • The Mills Family

    $100

  • Ron Bourque

    $50

  • Michael Burgamy

    $1,000

  • Chris & DeAnna Campbell

    $50

  • Richard Ballor

    $100

  • Ranucci Family

    $50

  • Anonymous

    $100

  • Kim Leonard

    $100

  • Dunlap Family

    $50

  • Theresa and Jim Sanderson

    $25

  • Neil and Laurie

    $100

  • Tiffany and Joel Appel

    $250

  • Leslie Robinson

    $25

  • Michael Staley

    $50

  • Traci Sherman

    $50

  • Bixlers

    $75

  • Shuster's

    $100

  • Connie and Ron Morris

    $50

  • Smokey and Carrie Ridgley

    $100

  • Iris Hentze

    $30

  • Ian & Amy Miller

    $50

  • Blaine & Amy Stern

    $50

  • John Ballor

    $100

  • Tyler Salazar

    $250

  • Ray and Lorie Bonita

    $50

  • Scott Lynes

    $250

  • Guardian Capital Partners

    $500

  • Dia Rajab

     

  • Matt & Sara Kellogg

    $50

  • Dan Bell

    $25

  • Peter and Rachel Cullen

    $200

  • Edward Haibt

    $50

  • Anonymous

     

  • Sharon Rhoads

    $100

  • Anonymous

    $30

  • Anonymous

    $30

  • Steve and Cathy Hilfinger

    $100

  • Anonymous

    $250

  • Angela Barrett

     

  • The Stuart Family

    $50

  • Anonymous

    $30

  • Julie DeNicola

     

  • Anonymous

    $30

  • Julie and Mike Dohm

    $50

  • Liz and Bill Stinson

    $25

  • Fran Sandon

    $50

  • Laura Meyer

    $25

  • Anonymous

     

  • Iowa

    $25

  • Lynn Bradford

    $10

  • Linda Shaw

    $25

  • Vickie Groetken

    $20

  • Anonymous

    $30

  • Lona & Izzie

    $15

  • Kristina Smith-Becker

    $50

  • Kasie Warren

     

  • Chris Csizik

    $15

  • Matthew Lozano

    $250

  • Beth and Jack

     

  • AJ Anderson

    $100

  • Dave & Paula Kummer

    $25

  • Chrissy Madsen

    $10

  • Aorta Tendon

    $10

  • Karen Shudinis

     

  • Patrick Madsen

    $25

  • Wes and Maya

    $10

  • Steve and Angie Rice

    $250

  • Anonymous

    $30

  • Anonymous

    $30

  • Bill Stinson

    $150

  • Jim & Dianne Freeman

     

  • DeJesus Family

    $50

  • Catherine & Andrew Born

    $10

  • Mark and Mary Adams

    $50

  • Nina Young

     

  • Timothy Guldemond

    $100

  • Mark Weglowski

    $100

  • Kathy Knutson

    $100

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113% Raised of$7,500 Goal

Fundraise for this Campaign

The Team: $8,500 TOTAL RAISED SO FAR

Fundraiser Title

Shelby Bates

Amount Raised

$7,550

 

101% Raised of$7,500 Goal

Fundraiser Title

Kelly Bates

Amount Raised

$310

Fundraiser Title

amy miller

Amount Raised

$130

Fundraiser Title

Jaal Mann

Amount Raised

$80

Fundraiser Title

Becqui Masters

Amount Raised

$60

Fundraiser Title

Kaylyn McGhee

Amount Raised

$30

Fundraiser Title

Anna Sheffer

Amount Raised

$30

Fundraiser Title

Clare James

Amount Raised

$30

Donor Comments

Kathy Knutson

Kathy Knutson

DONATION: $100

Sorry I am late but still wanted to send in my donation...Great Job Shelby! 2 years ago

Mark Weglowski

Mark Weglowski

DONATION: $100

2 years ago

Timothy Guldemond

Timothy Guldemond

DONATION: $100

2 years ago

Nina Young

Nina Young

2 years ago

Mark and Mary Adams

Mark and Mary Adams

DONATION: $50

2 years ago

Catherine & Andrew Born

Catherine & Andrew Born

DONATION: $10

Go Shelby!!!! 2 years ago

DeJesus Family

DeJesus Family

DONATION: $50

2 years ago

Jim & Dianne Freeman

Jim & Dianne Freeman

Honoring Kelly & Elizabeth Freeman 2 years ago

Bill Stinson

Bill Stinson

DONATION: $150

2 years ago

Anonymous

ANONYMOUS

DONATION: $30

2 years ago