16 days away!
April 01, 2016
BENEFITING: RETT SYNDROME ASSN OF MASSACHUSETTS
ORGANIZER: RETT SYNDROME ASSN OF MASSACHUSETTS
EVENT: 2016 Boston Marathon
I first encountered Rett Syndrome through my I Run 4 buddy Lauren!
In May 2014, I was matched with Lauren through the organization I Run 4. Lauren is a four year old little girl who was diagnosed with Rett Syndrome early in 2014. Before being matched with Lauren, I had never heard of Rett Syndrome. Since meeting my sweet Lauren I have learned so much more about Rett and the struggles that Lauren and her family encounter on a daily basis. I would like to run for Team Rett in honor of Lauren, her family and their desire to see their daughter walk, talk and run! I got a chance to meet my sweet Lauren for the first time this summer (she lives in Texas and I am in Florida). My heart broke even more. Holding this sweet little girl in my arms and getting her sweet kisses melted my heart. She is the most precious little girl and no little girl should have to endure what Rett gives them.