Multiple-System-Atrophy's profile image - click for profile

The Multiple System Atrophy Coalition's Fundraiser:

MSA Coalition's Multiple System Atrophy Research Fund

The Multiple System Atrophy Coalition's Photo

THE STORY:

Pam Bower wrote -

Multiple System Atrophy is a rare, life limiting neurological disease, so rare that most doctors have not even heard of it.  For those diagnosed, it is a death sentence.  There are no drugs that stop it's relentless progression. 

Over the course of 5 to 10 years, victims are robbed of their ability to walk, talk, chew, swallow and breathe, yet until the end their intellect remains intact.   Not only are their bodies assaulted, but also their dignity and sense of worth.  The stigma of having a rare disease leaves them feeling isolated from their community and even from relatives and friends who don't understand or can't cope with the reality of the disease.   Families remain in a constant state of grief as the disease eats away at their loved one.

People diagnosed with cancer are offered tools with which to fight the disease...  surgery, radiation, chemotherapy. People diagnosed with Multiple System Atrophy simply have no such tools to fight with.  With your help we can change that.

The MSA Coalition has an established Multiple System Atrophy Research Fund to support finding the cause of MSA and eventually a cure. It is the MSA Coalition’s belief that with a small number of MSA patients in the U.S. and globally, a centralized MSA Research Fund is critical to pooling money so the funds can be used in the most effective way possible.  

The need for donations has never been more urgent. 

As of May 2013 I know of TWO promising clinical research projects which are unable to start accepting MSA patients until their funding needs are met. 

The time is now to take action.  Please help by donating today.

Please Donate and click on the Create A Fundraising Page button to help me fundraise for this amazing organization. 

Thank you for your generous support.

Pam

 

Find out more about the MSA Coalition

Press Releases:

May 20, 2013 - Multiple System Atrophy (MSA) Research Grant Program Announced

April 22, 2013 - The SDS/MSA Support Group Officially Changes Name to the Multiple System Atrophy Coalition

**As a 501(c)3 charity all donations made to the MSA Coalition and the MSA Research Fund are tax deductible for U.S. tax payers. 

 

DONATE

To This Fundraiser

$5,275

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Debbie Zaccaria

    $20

  • Nick Wade

    $1,000

  • Bob Yant

    $50

  • Atlassian, Inc

    $1,000

  • Rafael Sánchez -Montserrat

    $25

  • The Mayer-Sangster family

    $2,000

  • Susan Brandwein

    $100

  • Diane McLaughlin

    $40

  • Janet Goldberg

    $50

  • John Francis Bovello

    $50

  • Kathy Bovello and Joan Lee

    $100

  • The Associates of the Portland Marriott Downtown Waterfront

    $50

  • Jim Magno

    $40

  • FTA Staff

    $100

  • Paul & Jodie Siegle

    $50

  • Pauline Coleman

    $50

  • Mike and Carol Trigonoplos

    $50

  • POLLARD CONSTRUCTION COMPANY

    $200

  • Mrs. Kathleen Bovello

    $300

  •  
  •  
  •  

Fundraise for this Campaign

The Team: $14,733 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Pam Bower - MSA Coalition Board

Amount Raised

$4,235

 

42% Raised of$10,000 Goal

Fundraiser Title

M, Logan and Brianna Gable

Amount Raised

$2,550

Fundraiser Title

Pam Eberly

Amount Raised

$1,600

 

53% Raised of$3,000 Goal

Fundraiser Title

Removed Removed

Amount Raised

$575

Fundraiser Title

Jodi Holley-Jones

Amount Raised

$238

 

16% Raised of$1,500 Goal

Fundraiser Title

Michael Emma

Amount Raised

$150

Fundraiser Title

Wendy Wesley

Amount Raised

$50

 

5% Raised of$1,000 Goal

Donor Comments

Mrs. Kathleen Bovello

Mrs. Kathleen Bovello

DONATION: $300

In Memory of John Bovello 6 years ago

POLLARD CONSTRUCTION COMPANY

POLLARD CONSTRUCTION COMPANY

DONATION: $200

MARGUERITE GIBSON 6 years ago

Mike and Carol Trigonoplos

Mike and Carol Trigonoplos

DONATION: $50

In memory of John Bovello 6 years ago

Pauline Coleman

Pauline Coleman

DONATION: $50

In Memory of John Bovello 6 years ago

Paul & Jodie Siegle

Paul & Jodie Siegle

DONATION: $50

In Memory of John Bovello 6 years ago

FTA Staff

FTA Staff

DONATION: $100

In Memory of John Francis Bovello 6 years ago

Jim Magno

Jim Magno

DONATION: $40

In memory of John Francis Bovello - my condolences and best regards to the family 6 years ago

The Associates of the Portland Marriott Downtown Waterfront

The Associates of the Portland Marriott Downtown Waterfront

DONATION: $50

Our deepest sympathies during this difficult time for teh Bovello family. The associates of the Portland Marriott Downtown Waterfront. 7 years ago

Kathy Bovello and Joan Lee

Kathy Bovello and Joan Lee

DONATION: $100

In memory of John Francis Bovello. 7 years ago

John Francis Bovello

John Francis Bovello

DONATION: $50

In Memory of John Francis Bovello 7 years ago