EVENT DATE: Oct 15, 2016
We are proud to announce the first 2016 Massachusetts Walk-Run-N-Roll benefitting the Transverse Myelitis Association (TMA) on Saturday October 15, 2016 located at Endicott Park, Danvers, Massachusetts.
This event is in honor of our son Noah Holt. We hope to educate our community on rare neuro-immune disorders and raise funds for research and improve clinical care for patients and their families.
Noah was diagnosed with Acute Flaccid Myelitis (AFM) in October 2014 at 6months of age. Without the clinical knowledge of how to treat AFM and intensive physical therapy Noah would not be here he is today. We are grateful for the innovative research and clinical care the transverse myelitis association is providing the rare neuro-immune community.
Unfortunately there is no way of preventing or early screening for rare neuro-immune disorders the TMA research agenda is focused on advancing the scientific understanding of and therapy development for these rare disorders by supporting the training of clinician-scientists dedicated to these rare disease and by supporting basic and clinical research. The transverse myelitis association also wants to promote awareness and to empower patients, families, clinicians and scientists through education programs and publications. This all ties in to support and advocate for individuals and their families diagnosed with rare neuro-immune disorders of the central nervous system.
We have made it our family mission to take back acute flaccid myelitis and increase awareness for all the individuals suffering from rare neuro-immune disorders: Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM), including Acute Flaccid Myelitis (AFM).
Please join us on Saturday October 15, 2016 at Endicott Park located in Danvers Massachusetts to raise awareness and funds to continue to secure the on going clinical research needed for these disorders!
2016 Massachusetts Walk-Run-N-Roll for TMA committee: Gayla Bartlett, Mitch & Elisa Holt. You can E-mail the committee at: MAWalkRunNRoll.ForTMA@gmail.com