Way to go team
May 23, 2017
BENEFITING: LUPUS FOUNDATION OF NORTHERN CALIFORNIA
EVENT DATE: Jun 11, 2017
I believe Chris had been suffering for some time, maybe a year, but he wasn't quite sure what was going on with his body. He was tired and at times felt very ill. It all started to really rear its ugly head in July of 2016, he ended up with a very red and swollen arm and was originally diagnosed with tendonitis. His arm ended up bursting open a week later and he was hospitalized. They flushed him with antibiotics and sent him home the next day, but he never fully recovered. Chris wasn't too trusting of doctors at this time because he felt they didn't listen, but I will say, HIS doctor didn't listen. He continued on not feeling well and not being able to do much and then I noticed his feet swelling in September, but he brushed it off, so I let it go. He would get home from work most days and go straight to his room and sleep, but was always tired and was looking really bad. I actually thought he was suffering from deep depression and I felt helpless, I wanted my happy go lucky son back and I didn't know what to do. In late October, he was really bad, barely able to go to work and one day he called me and said mom I can't stand up. He was trying his hardest to get ready for work and he just couldn't dress himself. We rushed him to the hospital and were told he was in bad shape, his blood was starting to dry out and his kidneys weren't functioning at all and he was losing all his protein and he was extremely swollen. The sacs around his heart and lungs were filled with fluid and making his resting heart rate and average of 170 bpm. He had ulcers all over his fingers, which we later found out were from blood clots that go to the fingers and toes. They started running all sorts of tests and trying to get him comfortable. We had so many doctors, so many different specialists working on his case at times my head was spinning with information. Finally four days later we were given the diagnosis of Lupus Nephritis with FSGS. We were told his case is very rare, so rare that only 1% of the population has this type of lupus. We also found out at his first visit after leaving the hospital, a medical report is being written on his case, that will be published at some point. Yeah for my son being a percenter. I now know what the signs of lupus are and what to look for. Chris is slowly recovering and has come a long way from that ugly day in October. Our team wants to raise awareness and find a cure, not just a bandaid for lupus.
We invite you to join Northern California's largest lupus awareness event, the Drumbeat for a Lupus Cure 5K Run & Walk. Now in our 23rd year, 2017's Drumbeat 5K is expected to make its mark with 1,000 expected runners and walkers, friends, family members, community members and exhibitors. Oh, and the Drumbeat 5K isn't just pet friendly, you can enter your four-legged bestie in our Mascot Contest!