March 09, 2017
Lupus is a chronic autoimmune disease that affects more than 1.5 million Americans. A little over a year ago, I was diagnosed as one of them.
Lupus can attack virtually any organ of the body, including the kidneys, brain, heart, and blood. There is no known cause or cure.
Nine out of ten lupus patients are women, the majority of whom are of minority descent. In this new age of drastic change, women, civil, and human rights are in danger. With the threat to the ACA, and very real discrimination the majority of the 1.5 AMERICAN lupus patients face - your help, and the need for a CURE is more important than ever.
My personal journey with Lupus really began in the spring of 2015; although there were signs and symptoms up to 6 years before then, doctors had never connected the dots. In June of 2015, a primary care physician first started the diagnostic process for Lupus. I had my very first butterfly (malar) rash. She referred me to a Rheumatologist and Dermatologist, but after many months of getting sicker and sicker, without proper tests being run, and being given insane diagnoses and completely inadequate care - I finally got a referral to Dr. Daniel Wallace (the original founder of Lupus LA.)
So, in December of 2015, after a single appointment, I had a diagnosis of probable lupus and was started on treatment for connective tissue disease. From the day I met Dr. Wallace, no matter how much my health worstened, or how many other specialists I had to see, or how many diagnostic procedures I needed...I knew I was going to be okay. He might be the most brilliant man alive, and he definitely is the most compassionate. Despite my eventual development of Systemic Lupus, Dr. Wallace made sure I had the best care in the world.
I see multiple specialists of his referral to help with my ongoing care. I owe huge gratitiude to some of them, as they are inspiring and kind and some of greatest people I know - my pulminologist, my dermatologist, and my neurocognitive rehabilitation specilaist...thank you.
I will never get back the year and a half of my life that I lost to this disease, but I want to be able to gain many, many more. While people in my life have disappeared, Lupus LA has been there for me EVERY step of the way. The one and only thing that could make this unfortunate situation any better would be A CURE. Let's DOOOOOO THIS.
ps - there is no spell check on this (what year is this??), so please excuse any mistakes I may have made in the ordering of letters.