As many of you know, I have Pulmonary Arterial Hypertension. I was diagnosed in 1997 with a projected life span of 3 years. A true game changer for me and my family. This desease is fatal!
Symptoms of PAH are significant to include shortness of breath, exhaustion, edema in the legs and belly, inability to climb stairs or walk a short distance, dangerously low oxygen saturation and many more.
With research, from donations, 13 new medications have been developed. These help us with our daily functions to a degree; yet they are not a cure. As our contions change, docotors attempt other options. Some work and sadly some don't. I have been blessed with a new medication, (added to my previous medication regime) and have stabilized for now.
Many of our PH Support Group members have died, which reinforces the seriousness of our disease. One of our members had a double lung transplant thusly no more PAH. Another definite game changer for her.
Please consider makeing a donation, or register to participate in the event. You can run, walk, use a wheel chair, push a baby carriage, or take a walk around the lake. We have a silent auction, an area for the kids and an educational presentation about PAH.
I would greatly appreciate your support as do many others! We need to cure PAH!