BENEFITING: TY LOUIS CAMPBELL FOUNDATION INC
ORGANIZER: TY LOUIS CAMPBELL FOUNDATION INC
EVENT: 5th Annual TYathlon
EVENT DATE: Sep 09, 2017
As some of you may know, I have a reversed tattoo above my chest so when I look in the mirror it reads 1841 as a constant reminder of how many days my first-born son, Ty, lived. October 18th of this year will be 1842, the day I've been dreading for a long time. 1842 represents Ty being in heaven longer than he was with us on earth. As fate would have it, this October 18th also marks the first birthday of our newest born son, Bodhi Ty Campbell.
This year I will be racing in the 5th Annual Tyathlon. It's the one time each year that I personally ask for monetary donations to support my race efforts for the foundation. Take a minute and read below to understand or reaquiant yourself as to why we do what we do. Please help me reach my goal by donating and sharing this page.
Louis Campbell (Ty's proud Father)
Over the course of two years and two months, Ty endured 20 surgeries, 11 cycles of various chemotherapies, 44 rounds of radiation to the brain and brainstem and 60 two-hour treatments in a state-of-the-art hyperbaric oxygen chamber. One year after radiation therapy was completed, Ty suffered a brain bleed and brainstem necrosis that left him paralyzed from head-to-toe. He spent more than 225 nights in a hospital bed. Despite all of this, he never stopped fighting and he never stopped smiling every step of the way. Ty Campbell was indeed “super” in every way.
Since the inception of the TLC Foundation, we fund a doctor at NY Presbyterian Weil-Cornell to collect genetic data so that we can find specific mutations most commonly found in these deadly cancers and develop better, less invasive ways to treat children with these types of cancers. We fund a 3-year research project at Stanford University that is studying a unique anti-body that is showing promising results for pediatric brain tumors. Last year, the TLC Foundation also funded a less toxic immunotherapy clinical trial at Memorial Sloan Kettering; this clinical trial will give patients like Ty an option here in the US that was not offered in years past.
Please take a moment to put yourselves in our shoes by reading a post from my wife, Cindy, written December 11, 2010 after we received the news that Ty was placed on hospice for the first time.
Our hearts are bleeding, our souls broken
The news we received following Ty's MRI was devastating. It was not the miracle MRI we were praying for. I'm sorry for keeping everyone on pins and needles, but I needed some time before posting this update so I could digest everything and control my emotions. I will keep it short tonight, and I hope to have more time over the next couple of days to share with you all that is swimming in my head.
When we were told that Ty had a tumor, it was the most horrifying news imaginable... but hearing that his cancer has metasticized and that there is no chance of a cure has completely crushed our souls, stolen the air from our lungs and shattered our hearts into a million pieces. It has been a struggle just to keep breathing. I have to sigh constantly just to catch my breath.
We have already arranged for on-call hospice care at home and we are setting up a trip to Disneyworld next week through the Make a Wish foundation. We want this time with Ty to be magical. We are told to be prepared for as few as four short weeks, or as long as three months. During this time at home, Ty has been amazing. He believes he is getting better with every day. He says, "I peel bedda all-weddy!". He told me just yesterday that he's ready to visit his school in Long Beach and find another school near his new home. I struggle to smile without tearing up and I tell him, "of course." He has been so happy, his belly laughs keep me smiling despite my broken heart and my throbbing head.
Today we went to cut down our Christmas tree. Ty picked out the most perfect tree I've ever had in all my life. He is so proud of his tree, I can't wait to brag on his behalf by posting some pictures. We are living every day to it's fullest, and making sure that Ty is treated like the perfect, most special little boy that he is. I want you to enjoy and appreciate every minute of his time with us through photographs, so I promise to share photos of his new superhero room and the pictures we took with Spiderman, Batman and Superman the other day. I will also share pictures of him at the tree farm and with his choo choo train under the tree and so much more. Next week we will make a trip to Long Beach to visit with Ty's favorite Eva, with his beloved Sissy and Colleen, and all of our friends and neighbors. In the meantime, here is one I took with my phone this morning. The loves of my life :)