WOW! Thank you!
June 18, 2016
Dear friends, please help me raise money for this most worthy cause!
See some details below about the EB Partnership and watch the (emotional) videos to understand the impact of this disease.
You'll learn like I did that we need to get to a cure as soon as possible for these kids! and their families - and that the biggest obstacle to curing EB is money, and that this cure is possible during our lifetime.
Please donate any amount you can, and help us get to a cure!
From the EB RESEARCH PARTNERSHIP: We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.
Leading researchers say treatments and a cure for EB are within reach—for every person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research.