BENEFITING: ACE BAILEY CHILDRENS FOUNDATION
ORGANIZER: ACE BAILEY CHILDRENS FOUNDATION
EVENT: 2015 Boston Marathon
EVENT DATE: Apr 20, 2015
Dear Friends & Family,
I think its fair to say we all have a bucket list. Those things we’d like to do or accomplish before we one day leave this earth. For me, one of those things in my life was to be a father. In 2008, I got to make an addition to my bucket as my wife Natalie and I were blessed with a beautiful baby girl named Jocelyn. Jocelyn was a peanut at birth but she was happy and healthy and we were thankful for that. Jocelyn was your normal baby. She cried, went to the bathroom, slept here and there, and developed like all babies do. That little tiny phase went by so fast and before we knew it she was smiling back, talking, and walking en route to becoming a beautiful little girl. She was a happy infant, loved to smile, laugh, run, and play. Like most infants, she kept her parents busy. We lived in Indiana at the time and at 18 months old Jocelyn started to act different. She was withdrawn, cranky, lethargic, a little pale, and started to cling exclusively to her mother which was something that was very unlike her.
We took her into her pediatrician and before long we were told to head right to Riley’s Children’s Hospital as Jocelyn was not well at all. While we were concerned, we didn’t really understand what was happening and how sick she really was. It was a quiet and unsettling 45 minute ride for both my wife and I. After we we rushed into the ER at Riley (our pediatrician had called ahead) there were a whole host of physicians and nurses that began to run tests on her. We knew then that something was wrong as we watched everyone move with a sense of urgency to treat her. About 30 minutes later our doctor came in with the news. Jocelyn had a hemoglobin of two (normal being somewhere around 10-12). While we didn’t know the gravity of this number at the time it didn’t take long to figure out when they said we had to take her to ICU to do several blood transfusions. Then these words came out amid our blank stares given what was happening “If you hadn’t brought her in, you would have lost her”. Natalie and I both broke down in tears.
After a week in ICU we learned that Jocelyn had developed severe anemia secondary to parvovirus which caused her hemoglobin to drop so low. Several blood transfusions, blood draws, and an amazing staff of doctors, nurses, and staff saved her life and forever changed ours. We now have a beautiful six year old girl that has her whole life in front of her.
It’s this story that brings me to The Ace Bailey Children’s Foundation. As parents of a sick little girl, the work of the Ace Bailey Children’s Foundation is something that sick children and parents truly appreciate. I hope you will join me in raising more than my goal of $5000.00 in support of The Ace Bailey Children’s Foundation. This is a terrific organization putting smiles on the faces of a lot of parents and sick children everyday.
“The work of the Ace Bailey Children’s Foundation focuses on the well-being of hospitalized children through the building and renovation of hospital environments that improve the family-centered and softer side of hospital care. We strive to reduce the stress of pediatric hospitalization by creating environments that are less clinical in appearance and more comforting and soothing for children and their families. The Floating Hospital for Children at Tufts Medical Center in Boston is the recipient of our funding”
The 2015 Boston Marathon is another bucket list item for me. I now have two beautiful daughters, my wonderful wife Natalie, and a terrific foundation I am going to fundraise and run for. You can follow my training and progress on Facebook and Instagram under the hashtags #craigrunsforacebailey and #acebaileychildrensfoundation
Hope to see everyone in Boston on April 20th 2015! Happy Running!
To learn more please visit The Ace Bailey Children's Foundation website at http://www.acebailey.org
The Ace Bailey Children’s Foundation was established in memory of former Boston Bruin, Garnet “Ace” Bailey, who was killed in the terrorist attacks of September 11, 2001. Ace’s family has created the Foundation to honor his memory and to perpetuate his deep caring for the happiness of children through their work.